Cystic Fibrosis, Part 3 — Suggested Form Letter to Communicate with Schools

Suggested Cystic Fibrosis Letter from Doctor to School

To Whom it May Concern,

_________________________________________________ is under our care at

_________________________________________________ for a diagnosis of cystic fibrosis (CF). Cystic fibrosis is an inherited disease that mainly affects the lungs and the digestive system.

As a result, _________________________ will need to take the following pancreatic enzyme medication with all meals and snacks. The only usual exception is drinks that are mainly water, sugar or fruit.

________________________________________________________________________
Enzyme Brand Name

_____________________________________ __________________________________
Number of capsules with meals.        Number of capsules with snacks

These enzymes are not addictive, and will not change the behavior of the student. Most children with CF have been taking these enzymes since infancy, and take them on their own. If children with CF are allowed to take their enzymes on their own they are usually more compliant with this vital part of their care. As always, if a child takes medication not prescribed for them, please call poison control at (913) 588-3333.

Please contact us with further questions.

Sincerely,

______________________________________________________
Physician Signature

______________________________________________________
Print Name

______________________________________________________
Phone Number /Date


For more information

Part 2 — Implications for School

Part 3 — Suggested Form Letter to Communicate with Schools

National Heart, Lung, and Blood Institute

NHLBI Information Center
PO Box 30105
Bethesda, MD 20824-0105
301-592-8573

Cystic Fibrosis Foundation

800-344-4823

Contributed by:

Kathy Davis, MSEd, PhD
Director, Pediatric Education and Child Life
University of Kansas Hospital
Kansas City, Kansas Public School District